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Contact and national portal updates
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senthil10 authored Nov 23, 2023
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2 changes: 1 addition & 1 deletion content/english/biobanks/_index.md
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Expand Up @@ -20,7 +20,7 @@ As of May 2023, the Sample Collection Database contains information about **36 s

### Submit information about sample collections

Those wishing to submit information about their sample collections to the database should [contact Biobank Sverige](https://biobanksverige.se/provsamlingar-publicerade-i-covid-19-data-portal-sweden-underlattar-forskning-om-covid-19/) (the linked page also contains forms for adding new collections to the database). Questions, comments, or suggestions regarding the database itself can be sent to <datacentre@scilifelab.se>.
Those wishing to submit information about their sample collections to the database should [contact Biobank Sverige](https://biobanksverige.se/provsamlingar-publicerade-i-covid-19-data-portal-sweden-underlattar-forskning-om-covid-19/) (the linked page also contains forms for adding new collections to the database). Questions, comments, or suggestions regarding the database itself can be sent to <pathogens@scilifelab.se>.

### Responsible organisations

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5 changes: 3 additions & 2 deletions content/english/biobanks/add_biobank.md
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Expand Up @@ -3,9 +3,10 @@ title: Add a new biobank to the Swedish COVID-19 Sample Collection database
toc: false
recaptcha: true
---

The form below can be used to add a new biobank to the Swedish COVID-19 Sample Collection database which is part of the Swedish national COVID-19 data portal. All information provided in the form below will be displayed on the page of the biobank in the registry. Please fill in as many fields as possible so that the researchers have a good idea about what they can expect from the biobank.

Note that we distinguish between *biobanks* and *collections within biobanks*. Even if a biobank has a single collection, you should fill out both the form for adding a new biobank and the form for adding a new collection. If you would like to add a collection to a biobank that has already been registered, please fill out [the form for submitting a collection instead](/biobanks/add_collection/).
Note that we distinguish between _biobanks_ and _collections within biobanks_. Even if a biobank has a single collection, you should fill out both the form for adding a new biobank and the form for adding a new collection. If you would like to add a collection to a biobank that has already been registered, please fill out [the form for submitting a collection instead](/biobanks/add_collection/).

{{< add_biobank_form >}}

Expand All @@ -15,4 +16,4 @@ The personal data you provide in this form, your name, email address and phone n

The information you provide will be processed for research purposes, i.e. using the lawful basis of public interest and following the Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 (General Data Protection Regulation) on the protection of natural persons about the processing of personal data and on the free movement of such data.

The following parties will have access to processing your personal data: SciLifeLab Data Centre, Uppsala University and Biobank Sverige, Region Uppsala. Your personal data will be deleted when no longer needed, or when stipulated by the archival rules for the university as a government authority. If you want to update or remove your personal data please contact the controller SciLifeLab Data Centre at Uppsala University using <datacentre@scilifelab.se>.
The following parties will have access to processing your personal data: SciLifeLab Data Centre, Uppsala University and Biobank Sverige, Region Uppsala. Your personal data will be deleted when no longer needed, or when stipulated by the archival rules for the university as a government authority. If you want to update or remove your personal data please contact the controller SciLifeLab Data Centre at Uppsala University using <pathogens@scilifelab.se>.
9 changes: 5 additions & 4 deletions content/english/biobanks/add_collection.md
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Expand Up @@ -3,16 +3,17 @@ title: Add a new collection to the Swedish COVID-19 Sample Collection database
toc: false
recaptcha: true
---

The form below can be used to add a new collection to the Swedish COVID-19 Sample Collection database which is part of the Swedish national COVID-19 data portal. All information provided in the form below will be displayed on the page of the collection in the registry. Please fill in as many fields as possible so that the researchers have a good idea about what they can expect from the collection.

Note that we distinguish between *biobanks* and *collections within biobanks*. Even if a biobank has a single collection, you should fill out both the form for adding a new biobank and the form for adding a new collection. If you would like to add a new biobank, please fill out [the form for adding a new biobank](/biobanks/add_biobank/). The portal team will add new biobanks as quickly as possible after receiving that form. However, in order to prevent delays, please specify the 'new' biobank name by selecting 'other (please specify)' in the biobank name list and type the biobank name in the box that appears.
Note that we distinguish between _biobanks_ and _collections within biobanks_. Even if a biobank has a single collection, you should fill out both the form for adding a new biobank and the form for adding a new collection. If you would like to add a new biobank, please fill out [the form for adding a new biobank](/biobanks/add_biobank/). The portal team will add new biobanks as quickly as possible after receiving that form. However, in order to prevent delays, please specify the 'new' biobank name by selecting 'other (please specify)' in the biobank name list and type the biobank name in the box that appears.

{{< add_collection_form >}}

#### Personal data policy

The personal data you provide in this form, your name, email address and phone number, will be used to maintain the Swedish COVID-19 Sample Collection database where information about biobanks and sample collections relevant for COVID-19 research will be made available. The registry will be a part of the [Swedish COVID-19 Data Portal](https://covid19dataportal.se/). The Data Portal is a service run by the SciLifeLab Data Centre on assignment from Vetenskapsrådet. It serves to address [the government assignment to VR](https://www.regeringen.se/regeringsuppdrag/2020/05/uppdrag-om-svensk-samordning-och-deltagande-i-eu-kommissionens-covid-19-dataplattform/) to participate in the European open data platform for COVID-19 research.
The personal data you provide in this form, your name, email address and phone number, will be used to maintain the Swedish COVID-19 Sample Collection database where information about biobanks and sample collections relevant for COVID-19 research will be made available. The registry will be a part of the [Swedish Pathogens Portal](https://pathogens.se/). The Data Portal is a service run by the SciLifeLab Data Centre on assignment from Vetenskapsrådet. It serves to address [the government assignment to VR](https://www.regeringen.se/regeringsuppdrag/2020/05/uppdrag-om-svensk-samordning-och-deltagande-i-eu-kommissionens-covid-19-dataplattform/) to participate in the European open data platform for COVID-19 research.

The information you provide will be processed for research purposes, i.e. using the lawful basis of public interest and following the Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 (General Data Protection Regulation) on the protection of natural persons about the processing of personal data and on the free movement of such data.
The information you provide will be processed for research purposes, i.e. using the lawful basis of public interest and following the Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 (General Data Protection Regulation) on the protection of natural persons about the processing of personal data and on the free movement of such data.

The following parties will have access to processing your personal data: SciLifeLab Data Centre, Uppsala University and Biobank Sverige, Region Uppsala. Your personal data will be deleted when no longer needed, or when stipulated by the archival rules for the university as a government authority. If you want to update or remove your personal data please contact the controller SciLifeLab Data Centre at Uppsala University using <datacentre@scilifelab.se>.
The following parties will have access to processing your personal data: SciLifeLab Data Centre, Uppsala University and Biobank Sverige, Region Uppsala. Your personal data will be deleted when no longer needed, or when stipulated by the archival rules for the university as a government authority. If you want to update or remove your personal data please contact the controller SciLifeLab Data Centre at Uppsala University using <pathogens@scilifelab.se>.
18 changes: 9 additions & 9 deletions content/english/contact/_index.md
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@@ -1,16 +1,16 @@
---
title: Contact and suggestions form
menu:
navbar_top:
name: Contact
weight: 20
identifier: contact
footer_about:
name: Support & Feedback
weight: 30
navbar_top:
name: Contact
weight: 20
identifier: contact
footer_about:
name: Support & Feedback
weight: 30
aliases:
- /suggestions/
- /suggestions/
recaptcha: true
---

We welcome questions and suggestions regarding the *Swedish Pathogens Portal* and we can help with your data management or data sharing question (or at least point you to where your question can be answered). You can fill out the form below and the [the team behind the Portal](/about/) will be happy to help you find a good solution. Alternatively, you can send us an email: [datacentre@scilifelab.se](mailto:datacentre@scilifelab.se).
We welcome questions and suggestions regarding the _Swedish Pathogens Portal_ and we can help with your data management or data sharing question (or at least point you to where your question can be answered). You can fill out the form below and the [the team behind the Portal](/about/) will be happy to help you find a good solution. Alternatively, you can send us an email: [pathogens@scilifelab.se](mailto:pathogens@scilifelab.se).
14 changes: 7 additions & 7 deletions content/english/contribute.md
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@@ -1,13 +1,13 @@
---
title: Contribute
menu:
top_actions:
name: Contribute
weight: 40
pre: <i class="bi bi-plus-circle-fill me-2"></i>
top_actions:
name: Contribute
weight: 40
pre: <i class="bi bi-plus-circle-fill me-2"></i>
---

The *Swedish Pathogens Portal* was built to serve the community of researchers working on relevant topics and we welcome any contributions from the community or suggestions on how the Portal can help the community. Whenever there is anything that you would like to share with your colleagues, do not hesistate to share it through the Portal. We welcome suggestions for new information or edits in all sections as well as ideas for new sections that could be launched.
The _Swedish Pathogens Portal_ was built to serve the community of researchers working on relevant topics and we welcome any contributions from the community or suggestions on how the Portal can help the community. Whenever there is anything that you would like to share with your colleagues, do not hesistate to share it through the Portal. We welcome suggestions for new information or edits in all sections as well as ideas for new sections that could be launched.

For example, you can suggest a dataset that should be covered in the data highlights section or even write one, you can suggest an available dataset that would be useful to others in the community, add information about your own or your colleague's ongoing research project, share data from your project in a new [dashboard](/dashboards/), and so on.

Expand All @@ -17,8 +17,8 @@ There are multiple ways to add/edit information on the Portal. Choose any method
<div class="row">
<div class="col-md-6">
<h3><i class="bi bi-envelope-fill"></i> Send us an e-mail</h3>
<p>The easiest way to send a quick suggestion or start a conversation with the Portal team is to simply send us an email. Email us at <a href="mailto:datacentre@scilifelab.se">datacentre@scilifelab.se</a> where your ticket will be assigned to one of the members of the Portal team.</p>
<p><b><a href="mailto:datacentre@scilifelab.se">Contribute through e-mail <i class="bi bi-arrow-right-circle-fill"></i></a></b></p>
<p>The easiest way to send a quick suggestion or start a conversation with the Portal team is to simply send us an email. Email us at <a href="mailto:pathogens@scilifelab.se.se">pathogens@scilifelab.se</a> where your ticket will be assigned to one of the members of the Portal team.</p>
<p><b><a href="mailto:pathogens@scilifelab.se">Contribute through e-mail <i class="bi bi-arrow-right-circle-fill"></i></a></b></p>
</div>
<div class="col-md-6">
<h3><i class="bi bi-github"></i> Send a GitHub pull request</h3>
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2 changes: 1 addition & 1 deletion content/english/data-management.md
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Expand Up @@ -79,7 +79,7 @@ The Swedish National Data Service has put together guidelines on research data m

## Hands-on data management support

All researchers affiliated with a university or research institute in Sweden working on research topics relevant to pandemic preparedness can receive free individual consultations and hands-on help within reasonable bounds from the _Swedish Pathogens Portal_ team. Simply send an email to [data-management@scilifelab.se](mailto:data-management@scilifelab.se) or [datacentre@scilifelab.se](mailto:datacentre@scilifelab.se). Your question will be assigned to a data steward with relevant expertise who can either help you directly or point you to the correct tool or service.
All researchers affiliated with a university or research institute in Sweden working on research topics relevant to pandemic preparedness can receive free individual consultations and hands-on help within reasonable bounds from the _Swedish Pathogens Portal_ team. Simply send an email to [data-management@scilifelab.se](mailto:data-management@scilifelab.se) or [pathogens@scilifelab.se](mailto:pathogens@scilifelab.se). Your question will be assigned to a data steward with relevant expertise who can either help you directly or point you to the correct tool or service.

You are welcome to send both general questions about best approaches to research data management, data management plans (DMPs), reproducibility, FAIR, and open science as well as specific questions about your research projects such as which repository to choose to deposit data, what the suitable metadata standards would be, which file formats to use, etc. In some cases the data stewards can act as brokers and submit data to repositories on your behalf.

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2 changes: 2 additions & 0 deletions content/english/partners.md
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Expand Up @@ -15,6 +15,8 @@ Besides [Sweden](https://www.pathogens.se), a number of other countries also lau
- [COVID-19 Data Portal Greece](https://www.covid19dataportal.gr)
- [COVID-19 Data Portal Italy](https://www.covid19dataportal.it)
- [COVID-19 Data Portal Japan](https://covid19dataportal.jp)
- [COVID-19 Data Portal Luxembourg](https://covid19dataportal.lu)
- [COVID-19 Data Portal Netherlands](https://www.covid19dataportal.nl)
- [COVID-19 Data Portal Poland](https://covid19dataportal.pl)
- [COVID-19 Data Portal Slovenia](https://covid19dataportal.si)
- [COVID-19 Data Portal Spain](https://www.covid19dataportal.es)
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